Head Tilt #73: Dancing with the Diagnosis (1 of 5)

Special note: On March 13, 1997, I was diagnosed with leukemia. During that time, I wrote a book titled Dancing with the Diagnosis, Steps for Taking the Lead When Facing Cancer. It was published a few years after the completion of my treatment. In honor of the 25th anniversary of the diagnosis, I am highlighting parts of the book and the lessons I learned in this five-part series. I hope the posts will encourage and maybe even inspire. I welcome comments and conversations! 

Other than a complete lack of white blood cells in my system, I had no other symptoms when the label of leukemia was thrust upon me. The diagnosis took me, my family, and even my doctors, by surprise. 

I spent the rest of 1997 getting chemotherapy and getting better. By the end of the year, I was in remission. 🎉

I was so very grateful! I was grateful I survived, of course (there was one very worrisome touch-and-go ER trip and then all the fear that comes with cancer), but I was (and remain) even more grateful that I traversed the entire experience.

I've often said that there's nothing like a life-threatening illness staring you in the face to help you see things clearly.

I learned so much. Cancer took my hair but gave me wisdom.

Excerpted from the prologue of Dancing with the Diagnosis, here is the imagery that helped me remember my strength as I danced with my own diagnosis. I got the idea in that place between sleep and awake, as I received chemotherapy. I wrote it out the next day. 

The Dance

“DANCE WITH ME," Cancer commanded.

"NO!" I shrieked in a fusion of fear and disbelief. 

I wanted nothing to do with this would-be suitor and surely couldn't comprehend why it had chosen me in the first place. Before I could make sense of this insanity, I realized this dance was not optional. 

Cancer's clutch was firm as it led me to the floor. Arm in arm we were clumsily stepping to the awkward beat of chaos. 

The dance it had choreographed for me was riddled with mismatched moves: dangerously low dips coupled with wild swings and unexpected turns. The music was equally discordant. High crescendos crashed into silence, and the tempo wildly sped up again. 

Like a lifeless rag doll pinned to my partner, I was spun in circles of sadness until I was left physically and emotionally exhausted. 

Just when I was sure I could dance no more, another dramatic change in tempo took me by surprise. My partner and I came face to face. Our eyes locked in fury. We seemed much less like dance partners now but more like a matador and a bull, ready for the fight. (Looking back, I wonder, "Which one was I?")

The new beat brought with it the realization that no longer need I follow in this twisted dance. If cancer and I were to be partners, I would lead. 

And lead I did!

My head cleared; my senses sharpened. Like water nourishing a wilted flower, control and determination rejuvenated every cell of my being. I kept my posture strong and stride swift. 

My spirited steps were carefully planned, precise, and perfectly timed with the new unfolding song. Our dance was transformed from one of a very physical nature to one created by the positive powers of my mind. 

The distance between cancer and me increased. 

We were back-to-back, barely touching, 

and it was not long until its shadowy figure was just a blur. 

As the song faded into the past, I found myself dancing solo. 

I stopped...caught my breath...and smiled. 

I slowly exited the dance floor, a wiser and more beautiful person.

Original art from Dancing with the Diagnosis, 2003





Head Tilt #74: What kind of news did you receive today? (2 of 5)

Special note: On March 13, 1997, I was diagnosed with leukemia. During that time, I wrote a book titled Dancing with the Diagnosis, Steps for Taking the Lead When Facing Cancer. It was published a few years after the completion of my treatment. In honor of the 25th anniversary of the diagnosis, I am highlighting parts of the book and the lessons I learned in this five-part series. I hope the posts will encourage and maybe even inspire. I welcome comments and conversations! 


Excerpt from Chapter 1: Choose Your Words Wisely

We did not choose our health issues. We did not ask for our lives to be put on hold. We did not volunteer for repeated hospital visits. We did not choose to dance this dance! When we reluctantly start our dance with any diagnosis, decision-making feels out of reach, and control is seemingly lost. As we search to regain personal power, it is essential to first review and perhaps modify the words we choose. 

The cycle is significant: Our word choices shape the realities we see, and the realities we see shape the words we choose. Censoring the negative words that creep into our daily vocabulary is one way to exercise control of our word choice, and thus, our realities. 

For instance, I once told my mother that I dreaded Fridays -- my clinic days-- because I always seemed to get some sort of bad news from my doctors. For me, this was true. My reality was that clinic days equaled bad news days-- I had plenty of evidence to support this; I always seemed to learn something I would have rather not known on Fridays. 

Being the ever-wise woman that she is, my mom instantly picked up on my use of the word "bad." Why would anyone in their right mind look forward to a visit when they received something "bad" each time? 


From there on, she asked that I not use the word bad to describe any kind of news I received on Fridays. Instead, we would view news in three tiers: 

1. News that wasn't immediately favorable was viewed as mere information; we would simply refer to it as just plain "news." 😐

2. News of a more encouraging type (improved health, steady progress) would be labeled as "good news." 🙂

3. News that topped the others (no need to be admitted to the hospital, surprise improvements) would be called "AMAZING NEWS!" 🤩

After each Friday clinic visit, I would classify that day's news and report back to my mom. Eliminating all possibilities of "bad" news for my mind and allowing myself to choose between neutral and positive alternatives softened the edge of many appointments. What we say shapes what we see. ❤️


Original art from Dancing with the Diagnosis, 2003



Head Tilt #75: The Caregiver Contract (3 of 5)

Special note: On March 13, 1997, I was diagnosed with leukemia. During that time, I wrote a book titled Dancing with the Diagnosis, Steps for Taking the Lead When Facing Cancer. It was published a few years after the completion of my treatment. In honor of the 25th anniversary of the diagnosis, I am highlighting parts of the book and the lessons I learned in this five-part series. I hope the posts will encourage and maybe even inspire. I welcome comments and conversations! 

At the time of the leukemia diagnosis, I was in my last semester of graduate school, studying communication. I looked at everything through a lens of communication, and still do! I am an avid advocate for talking about talk. I love to declare intent, unravel conversations, and make expectations overt. 

Excerpt from Chapter 11: Create Clear Communication With Your Caregivers and Support People.

We are not the only ones who feel a loss of control when the diagnosis is cancer. Caregivers and support people go through their own feelings of anger, helplessness, and confusion. In a sense, they dance their own dance with the diagnosis. They want what's best for us, but often have trouble figuring out what that is and how to deliver it. Roles are reciprocal: sometimes they need our help as much as we need theirs. 

I wrote the Caregiver Contract with these thoughts in mind, to clarify needs and ease initial tensions. Used early on, it also establishes some healthy communication ground rules for you and your support team. The top portion provides basic guidelines for positive support. The bottom portion of the contract, our agreement- reminds us of our own commitment. This portion holds us accountable. We are active participants in all parts of our healing process. 

All guidelines were inspired by real experiences. I made copies and distributed them to my caregivers. And then we'd talk about it. Effective communication is something that happens between people. It's not a linear event. 


Caregiver Contract

  1. Please don't be afraid of me. I am still the same person you've known and cared for; I just have a few new mountains to climb! 

  2. Please smile when you see me. Frowns bring me down. 

  3. Please ask me questions about my moods and feelings. It is not always correct to assume that I am sad, tired, mad, or depressed. At times I might be, but other times I am experiencing feelings o peace, happiness, and joy. Ask me how I feel and I'll tell you. 

  4. Please stay positive. 

  5. Please take very good care of yourself. You are extremely important to me. 

  6. Please gently ask my permission before trying to shift my perspective. Sometimes I am just not ready to look at the brighter side. I know you don't like to see me feeling low, but I need to travel through all my emotions instead of ignoring them. I'll let you know when I am ready for a new perspective. 

  7. Please don't ever give up! 

In turn, I agree that...

  1. I will never give up.

  2. I will be open and honest regarding my feelings (as soon as I know what they are).

  3. I will be an active participant in my healing process. When agreed upon, I will follow my doctors' orders and I will maintain a healthy mental attitude. 

  4. I will tell you my needs and attentively listen to yours. 

  5. I will keep my sense of humor.

  6. I will practice clear communication with you.

  7. I will always appreciate your love and support.

Original art from Dancing with the Diagnosis,2003 


 

Head Tilt #72: Hills are hard

University of California Santa Cruz: Campus of Hills! 


True story:

On the eve before my last half marathon, I made the mistake of reading past participants’ reviews of the 13.1-mile course. A few commented that it was surprisingly hilly. 


“Oh no!” I thought. “Hills are hard!” 


I worried. 


For a minute.


And then I remembered, "Hey! I train on hills!"


Hills ARE hard. And I love them. They test my commitment and my character.


On a recent Hill Day in my workout rotation, I couldn’t help but think of how running hills prepares me for so many other challenges in my life. 


1. First, I can’t run hills successfully without a strategy.


I’ve learned from the best coaches and athletes: I look up, not down– I focus on the top (but glance at the terrain every now and then!). My form matters. Smaller steps, lift those knees. I let my arms lead my legs– it’s a body party with every step! I lean in, but ever so slightly– I stay perpendicular to the slant. Every single time. ☀️


2. Next, hills remind me that after pain comes great pleasure.

My lungs burn, my muscles ache, and when I get to the top of the hill I am rewarded with the pride that comes with accomplishing hard things. Every single time. ☀️


3. Finally, running hills tests my mind, strengthening my resolve. Often a fleeting, but loud thought tells me to stop, quit, or give up. It’s a test of my grit. As long as I don't need to stop because of legitimate concern, I counter that chatter with one of my go-to hill power words: GO!, PUSH!, or CLIMB! Every single time. ☀️

 

I love hills. They are hard, but they build my strength, speed, and stamina. 


As in life, doing the hard stuff prepares me-- and all of us-- for so much more. 


☀️ The next training contract I am trying to get? I can’t succeed without a strategy. 


☀️ That pain of persistence and rejection as I forge my own path in the work world?  It’s often followed by the great pleasure of gaining a new client or learning a valuable lesson.


☀️ That self-doubt that sits next to me when things get tough? It is only quieted by my resolve to persist. 


I got this. You got this. We got this. ❤️


GO!

PUSH!

CLIMB!



Every single time. ☀️